Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. - AlzForum Alzheimer Research Paper of the Week


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Annotation

	Wicks P, Vaughan TE, Massagli MP, Heywood J. Accelerated clinical discovery using self-reported patient data collected online and a patient-matching algorithm. Nat Biotechnol. 2011 May;29(5):411-4. PubMed Abstract

	Comments on Paper and Primary News

	Primary News: Led by ALS, Social Networking Comes to Medical Research Comment by: Liz Horn
	Submitted 19 May 2011 \| Permalink	Posted 19 May 2011
	Advocacy organizations are establishing and managing registries and biobanks are playing a vital role in research. Genetic Alliance has an advocacy-initiated and advocacy-run registry and biobank (Genetic Alliance Registry & BioBank). This is a distinct program from the family health history mentioned above. References: S.F. Terry, E.J. Horn, J. Scott, P.F. Terry. Genetic Alliance Registry and BioBank: a novel disease advocacy-driven research solution. Personalized Medicine, 8(2): 207-13, March 2011. View all comments by Liz Horn

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