Caring.com
This website features original content focused exclusively on eldercare and end-of-life matters. Find information on health, daily care, housing, finances, nutrition, legal issues, and other caregiver concerns.
Doctor's Guide: Alzheimer's
Disease Information & Resources
Medical news alerts, discussion groups, and related resources.
Driving and Dementia [.pdf]
This 2007 article in the British Medical Journal reviews the data on the safety records of drivers who had been diagnosed with dementia and concludes that the risk of crashes is acceptably low for up to 3 years following diagnosis. They also find negative consequences of prematurely taking away driving privileges.
Eldercare Online
One of the
leading online communities where supportive peers and professionals help
caregivers improve the quality of life of patients and caregivers. Provides
news, online tools, chat, forums, and more.
Elderweb
The oldest and largest aging and eldercare sourcebook on the Web.
Ethical Issues
A summary of the Fairhill Guidelines, which were developed out of a nine-month series of discussions involving family caregivers and patients at the Fairfield Center for Aging in Cleveland
Feeding
Tubes, Calls to stop their use in dementia (NY Times Article)
The Forgetting: A Portrait of Alzheimer's
This site accompanies the PBS documentary "The Forgetting: A Portrait of Alzheimer's," a two-hour special aimed at helping people better understand and cope with Alzheimer's. The site provides information on symptoms, risk factors, coping, as well as stories and other resources. The site also provides interactive tools such as the Living Center, a set of online activities to enjoy with someone who has Alzheimer's.
Habilitation Therapy
This article describes an approach developed by Paul Raia and Joanne Koenig-Coste. "The aim of habilitation therapy is not to restore people with a dementia such as Alzheimer's disease to what they once were (i.e., rehabilitation), but to maximize their functional independence and morale. This approach also requires minimizing or eliminating many difficult symptoms of the dementia in spite of the person's progressive physical, cognitive and emotional limitations."
Healingwell
This site offers resources and interactive tools for caregivers and patients. It features news, articles, message boards and chat rooms, newsletters, books and reviews, and resource directories on Alzheimer's disease and other diseases and disorders.
Hearthstone
This web site provides information on Hearthstone assisted living residences for those with Alzheimer's disease and other dementias, located in the northeastern part of the U.S.. The site also provides information on its various programs as well as related news and events.
The
HD Lighthouse
The HD Lighthouse site is a voluntary effort to serve the
Huntington Disease Community. The site provides information
on diagnosis, treatment and care, research, and a community
forum.
HOPES: Huntington's
Outreach Project for Education, at Stanford
A public web resource on Huntington's Disease developed by
a team of students and faculty at Stanford University . The
site focuses on the scientific information on HD, including
HD basics, causes of HD, diagnosis, treatments, and related
science.
Innovations
in End-of-Life Care
On-line journal devoted to improving approaches to end-of-life
care. The June-July 1999 issue is titled: "Only Connect: Promoting
Meaning in the Lives of Patients with Advanced Dementia,"
and offers resources and on-line discussion forums aimed at
improving the care of individuals at advanced stages of a
dementing illness.
The Johns Hopkins Alzheimer's Disease
Research Center (ADRC)
The Johns Hopkins Alzheimer's Disease Research
Center (ADRC) is a multi-disciplinary group dedicated to studying the biological
basis of Alzheimer Disease, which will eventually lead to advances in treatment
and improved prognosis. The website provides information about the disease,
clinical studies and trials, treatment programs, and other valuable information.
Kingshill Research
Centre
This website is maintainted by the Kingshill Research Centre,
Swindon, UK, which aspires to improve "quality of life" for patients and caregivers
by producing high-quality research information for use in the development of new
treatment alternatives. Includes pratical tips.
National Association of Professional
Geriatric Care Managers
The GCM site provides a searchable database of
professionals who specialize in assisting older people and their families to
arrange for long-term care.
National Respite Locator
Provides information on respite services by state.
Nursing Home Compare
A U.S. Government Web-based tool that provides detailed information about the past performance of every Medicare- and Medicaid-certified nursing home in the country.
Nursing Home Info
This site provides a map-based search engine to locate facilities in a given geographical area. The site includes links to nursing home web sites, profiles, and contact information. The site also includes guides on needs assessment, selection criteria, and financial information.
Portal Mayores
This scientific portal specializes in geriatrics and gerontology. This website was created in 2001 as a result of an agreement of collaboration among the IMSERSO (Institute for Older Persons and Social Services) and the CSIC (Spanish Council for Scientific Research) to provide information about the elderly on the Internet. In Spanish.
Okada Specialty Guide Dogs
Okada Specialty Guide Dogs is a non-profit organization based out of
Citrus County Florida, which trains rescued dogs to aid people with
various difficulties. The areas of training are Hearing, Seizure,
Alzheimer's, residential therapy, companion, and Happy Hound, which is
a trained canine for children and young adults with a serious illness.
Rx Canada Universal Drug Store, Ltd.
A fully licensed online Canadian pharmacy providing discount prescription drug prices to American customers. Includes a directory of links to other drug-related resources.
Senior Housing Net
This Web
resource includes a directory of retirement communities, assisted living
facilities and nursing homes, with detailed descriptions, photographs, floor
plans, 360° tours, and direct communications links to onsite managers.
Additional information on health topics, long-term care financing, and more.
The Silver Knights
The Silver Knights is an informal nonprofit organization that teaches adults in the United States how to play chess in an effort to help prevent Alzheimer disease.
Veritas Medicine
Veritas
Medicine is a company that helps link up patients with ongoing clinical trials
for a variety of major medical conditions, including Alzheimer
Disease. The service is free to patients, and each patient's information is
kept confidential.
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