Updated 31 December 2007

Do you have a personal story about an encounter with the world of research, from a patient or caregiver’s perspective? Are you a physician or scientist who learned something of value from your relationship with a patient? Send us your essays (suggested length under 1,000 words) and we will regularly select one to share with our readers. Please send them to us and be sure to include your correct e-mail return address.

A Film About Dementia, Reviewed by a Person With Dementia
By Richard Bozanich

Perspectives
By Lisa Snyder. A quarterly newsletter written for people with dementia that addresses the concerns, reflections, and coping skills of individuals with Alzheimer's or a related memory disorder. (Vol. 13, No. 2) [.pdf]

New York Times: Self-Portraits Chronicle a Descent Into Alzheimer’s

Watching Memories Fade
By Stephen Gaudin

She Wanted Two Kisses
By Gwendolyn de Geest

The shadows of memory
By Daniel North

A Tribute to Randy Witter
By Barbara Witter

The Benefits of Early Intervention
By Kim Wolf

Three Words: A Caregiver Poem
By Marie Henderson

From My Pad to Yours
An essay by Marie Henderson

An Interview with Jenny Knauss
An interview available on the "Alzheimer's Spoken Here" web site.

Memory Bridge
A web site created by the Foundation for Alzheimer's and Cultural Memory dedicated to promoting communication with and memory preservation of persons with Alzheimer's disease.

Over and Under and Back from Whence you Came
An essay by Michael Verde.

It's Difficult to Think Straight...
Judy Ewens describes but five hours of her 5 ½ years as a caregiver. They weren't the first, the worst, or the last hours, but their stark intensity reminds us anew that AD is a nasty, unpredictable disease that annihilates its victims and destroys three sets of plans, hopes, and dreams: his, hers, and theirs.

The Long Goodbye
The Long Goodbye is a poignant and compelling CD by Pat Surface. A unique blend of Celtic and Eastern European sounds and rhythms, the CD is dedicated to Pat's father-in-law, Rocco Michael Passaretti, a victim of Alzheimer's disease.

A Whole New Me
An essay by Les Dennis.

If I Only Knew Then What I Know Now - Caregiving 101
An essay by Jacqueline Marcell.

Midsummer’s Nightmare at the Alamo
An excerpt from Elder Rage, or Take My Father...Please! How to Survive Caring for Aging Parents by Jacqueline Marcell.

Her Hands Bob
A poem and a painting by Elaine Alibrandi.

Dad, How Are You Feeling?
An artistic documentation of a father's life with late-onset Alzheimer's disease.

Chronicle of a Caregiver or From Supercilious to Sympathetic
An Essay by Sarah Goodwin (Six Installments)