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Home: Community
SITE POLL ARCHIVE

Important Notice: Opine Online provides an informal way for the research community to express its views on current topics. The results are not a scientific poll and do not necessarily reflect the percentages of all Alzheimer researchers who agree with these positions.

May 2007
Poll Question: If your parent had autosomal-dominant AD, would you seek predictive genetic testing?

No! Who needs the angst if there’s no cure?
7
Yes. Uncertainty causes more angst than knowing
8
No. Too afraid of insurance/workplace discrimination
4
Yes. Knowledge is power, even just to plan
39
Yes, if there was a good study I could participate in
12
Don’t know
6
Responses: 76
Comments on Site Poll
  Comment by:  paulyn gilbert
Submitted 20 May 2007  |  Permalink Posted 26 May 2007

Pro testing: There would be certain things I would like to say to my family and friends, or leave letters for them whilst I still could. It would be important to me to let them know how I really felt when my mind was sound. I am at the moment hearing my mother change weekly with her now-distorted view of how things are, which is very confusing. I now see just odd glimpses of her old self. A letter, knowing it was written and meant at the time would be worth its weight in gold.

View all comments by paulyn gilbert
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